Award winning CEO with a demonstrated history of growing a patient advocacy network. Outspoken Patient Advocate & Thought Leader, serving the MPN (myeloproliferative neoplasm - blood cancer) community by helping patients learn how to deal with the challenges of living with an often misunderstood illness. Because I have polycythemia vera (PV), an MPN, I can share deeply insightful, first hand information on how this illness affects my life and what other patients may also experience. 2023 Update: 👉 Seeking sponsors, partnerships, corporate and individual donors, business opportunities and content providers. In my role as CEO with MPN Cancer Connection and PV Reporter, I perform a multitude of duties: - Provide direct assistance to patients in need - Agile WordPress Designer / publisher - Social media influencer - Business development / partnerships - Writer/researcher - Interviews - Product/Industry spokesperson - Speaker - Podcaster - Patient advocacy board - Community leader - Successful 20 year career in high tech sales/management (primarily enterprise software solutions) provided the necessary tools for success, as I "re-invented" myself for a new role as a patient advocacy leader. Executive Director of MPN Cancer Connection, a Non-Profit 501(c)(3) public charity, serving the needs of fellow patients around the world since 2015. CEO and Founder of PV Reporter, the most comprehensive MPN website in the U.S. offering information and support for patients, caregivers and healthcare providers. Significant Achievements include: - MPN Heroes award, Recognized for commitment above and beyond the standard of MPN care, 2016. - Guest Appearance on The Doctors TV Show, for achievement in patient advocacy and recognition of PV Reporter website. - Awarded press credentials to ASH (American Society of Hematology) the largest hematology convention in the world. I have interviewed several doctors every year in attendance (2014 - 2022). - Front page feature article in MD Anderson Cancer Center newsletter, Fall 2016. "Mast Cell Mania: At the Root of MPN-Related Itching?" - Invited to and attended MPN Global Advocates conference every year since inception 2016 - 2022. - Writer of Ground-breaking articles that help patients solve problems while shining the spotlight on MPNs. - Received local newspaper coverage for my work helping cancer patients.